31 research outputs found

    The PEG-BOARD project:A case study for BRIDGE

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    Explanation before Adoption: Supporting Informed Consent for Complex Machine Learning and IoT Health Platforms

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    Explaining health technology platforms to non-technical members of the public is an important part of the process of informed consent. Complex technology platforms that deal with safety-critical areas are particularly challenging, often operating within private domains (e.g. health services within the home) and used by individuals with various understandings of hardware, software, and algorithmic design. Through two studies, the first an interview and the second an observational study, we questioned how experts (e.g. those who designed, built, and installed a technology platform) supported provision of informed consent by participants. We identify a wide range of tools, techniques, and adaptations used by experts to explain the complex SPHERE sensor-based home health platform, provide implications for the design of tools to aid explanations, suggest opportunities for interactive explanations, present the range of information needed, and indicate future research possibilities in communicating technology platforms

    A multimodal dataset of real world mobility activities in Parkinson’s disease

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    Parkinson’s disease (PD) is a neurodegenerative disorder characterised by motor symptoms such as gait dysfunction and postural instability. Technological tools to continuously monitor outcomes could capture the hour-by-hour symptom fluctuations of PD. Development of such tools is hampered by the lack of labelled datasets from home settings. To this end, we propose REMAP (REal-world Mobility Activities in Parkinson’s disease), a human rater-labelled dataset collected in a home-like setting. It includes people with and without PD doing sit-to-stand transitions and turns in gait. These discrete activities are captured from periods of free-living (unobserved, unstructured) and during clinical assessments. The PD participants withheld their dopaminergic medications for a time (causing increased symptoms), so their activities are labelled as being “on” or “off” medications. Accelerometry from wrist-worn wearables and skeleton pose video data is included. We present an open dataset, where the data is coarsened to reduce re-identifiability, and a controlled dataset available on application which contains more refined data. A use-case for the data to estimate sit-to-stand speed and duration is illustrated

    Cover Sheets Considered Harmful

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    The spread of the cover sheet is a divisive phenomenon. Their appearance is geographically bound and their content situated in the local political and financial context. In this article we discuss the arguments for and against the cover sheet in its guise as a fixture on institutional repository preprints, exploring the issue through statistical information gathered from survey material and from text analysis. We lay out the reasoning behind the use of cover sheets in the United Kingdom and discuss their prevalence and the underlying trends. In this manner, we identify concerns with the use of cover sheets from the perspectives of text mining and everyday use of repositories
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